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New SDS UK Forum Click here.
Unfortunatly we haven't received the funding we hoped from Children in Neeed and so Centre Parcs is canceled, an altern ative is being aranged.

Introduction
Hello Everyone
Welcome to the new look SDS UK website. we are sorry it has taken so long to update but hopefully now our new look will reflect this happy dedicated support group.
I would like to say a huge thank you to all past sponsors of this site especially the wright family in Lincoln. in order to go forward we have decided to remove old literature and thank you's of more than 12 months old from the back page, in order to give us more web space and to move forward with the website. we will keep a record of all past sponsors and donations and will always be very grateful and hope you will still continue to support us.
Any suggestions for the site would be good as it is your site!

Thank you sharon Chair SDS UK

Shwachman-Diamond Syndrome

Shwachman-Diamond Syndrome is an inherited condition that affects many organs in the body, including the bone marrow, the pancreas and the skeleton.

Children and adults with this condition suffer from infections, growth disturbances and complications of the blood system. A significant number of sufferers die from these infections, failure of the bone marrow or leukaemia.

Shwachman-Diamond Support (SDS) is a registered UK charity established to offer support and information to sufferers and their families. SDS is a 100% voluntary organisation and funding is solely dependent upon peoples generosity and the fundraising efforts of trustees and parents.

 

 

Contact info

All General Enquiries To::-
The Secretary

Tracy

Tracy Horsfield

26 Boundary Street
Heckmondwike
West Yorkshire
WF16 0ER
E-mail: t.horsfield@hotmail.com

Tel/Fax:-01924 407839


Chairperson

Sharon

Sharon Clusker


Vice Chairperson

Lee Dodderidge
01633 882367
lee.dodridge@virgin.net


Registered Charity Address

9 Tippett Close
White Stone
Nuneaton
Warwickshire
CV11 4SU

Tel/Fax: 02476 345199
E-mail: enquiries@shwachman-
diamondsupport.org

Reg. Charity No: 1081122

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